debra of America is a national nonprofit organization dedicated to improving the lives of those impacted by Epidermolysis Bullosa (EB). We integrate direct-to-patient programs and services, education, advocacy, close partnership with treatment developers, and research funding to foster meaningful change for those living with EB. Get to know the dedicated team behind debra of America, working tirelessly to support individuals and families affected by Epidermolysis Bullosa (EB).

Context Explanation

debra of America is part of DEBRA International, a worldwide network of national groups working on behalf of all people living with Epidermolysis Bullosa (EB). Our collective vision is to ensure that people living with EB have access to the best quality support and medical care, while also driving the development of effective treatments and ... Learn More debra Care Conference This multi-day biennial conference is designed specifically for EB families and the professional community to access the best information, discover new ideas, and connect with other EB families from all over the country. Learn More EB Doctor Directory Finding a doctor who knows EB is an all-too-common challenge.

Positive Psychology

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Positive Psychology
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Insight Material

Learn about Epidermolysis Bullosa (EB), a rare genetic disorder, its symptoms, treatments, and personal stories from the EB community at debra of America. Support Resources No one should face Epidermolysis Bullosa Simplex alone. debra of America offers free programs, personalized support, and trusted online resources to help individuals and families navigate life with EB. Founded in 1980, debra of America is dedicated to improving the quality of life of all people impacted by Epidermolysis Bullosa (EB) in the U.S. Learn more about our work.

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Final Conclusion

Dystrophic Epidermolysis Bullosa Research Association of America (debra of America) es a la unica organización nacional sin fines de lucro dedicada a promover la investigación para encontrar nuevos tratamientos y una cura para Epidermolysis Bullosa y proporcionar informacion y apoyo a las personas con EB y sus familias. Usted puede ponerse en contacto con debra of America por e-mail programs ...